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Helping Families Navigate Bone Cancer Surgery Decisions

Empowering families to make informed surgical choices when a bone tumor is located near the knee joint.

A diagnosis of osteosarcoma in a child or young adult brings uncertainty and life-changing decisions. The Osteosarcoma Decision Aid is a free, evidence-based resource designed to support patients and families as they consider options such as amputation, limb salvage surgery or rotationplasty. Created with input from patients, parents and orthopedic oncologists, this guide helps individuals understand the realities of each option, anticipate life after surgery, and engage in shared decision-making with their medical team.

What this resource offers:

  • Clear explanations of surgical options and potential outcomes
  • Guidance on how to talk to your surgeon using the PACE strategy
  • Stories from patients and families who’ve faced similar decisions
  • Questions to consider when imagining life after surgery
  • Tips for involving children and teens in the decision-making process

The Osteosarcoma Decision Aid is designed for use in conversations with your surgeon — it does not replace medical advice. All content has been reviewed by orthopedic oncology experts and is updated regularly.

Decisions are hard. Information shouldn’t be.


Explore the Osteosarcoma Decision Aid

This decision aid helped me feel more confident and prepared. It made an overwhelming decision feel manageable.

Parent of a child with osteosarcoma